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Muscular dystrophy NHS care criticised

Published on 24/08/2009
NHS provision for sufferers of muscular dystrophy has been criticised by an All Party Parliamentary Group.

An investigation by the group discovered that although research on neuromuscular conditions has improved, it has not been transferred to care.

Chair of the group Dave Anderson MP said that it was "totally unacceptable there are no NICE (National Institute for Clinical Excellence) guidelines available for muscular dystrophy".

Around 60,000 adults, children and babies suffer with the condition.

Recommendations made by the All Party group include getting the Department of Health to recognise neuromuscular services as specialised and a review of workforce needs and professional development.

Phillip Bucher, chief executive of the Muscular Dystrophy Campaign, said that he hoped the report would "put pressure on the NHS to start providing the standard of care that these patients so clearly need and deserve".

Muscular dystrophy is a disorder that wastes the muscles and in the last 50 years more than £50 million has been invested into researching treatments and cures for it.
© ActiveQuote Ltd. 2009

Categories:  Medical
Muscular dystrophy NHS care criticised NHS provision for sufferers of muscular dystrophy has been criticised by an All Party Parliamentary Group. An investigation by the group dis    tweet it on twittershare with your friends on Facebookshare with your friends on MySpaceBlog it on your LinkedIn profile

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